100+

Yesterday, I reached 100 days post-transplant. That’s the safe period where I had to be in isolation and on a neutropenic diet. But, my doctors weren’t too worried about me. My oncologist let me fly to Baltimore for my sister’s graduation from nursing school. I just had to be smart about it, wearing a mask in crowded places and on the plane.

I think traveling went pretty well. I was very paranoid every time I heard a sneeze or a cough. I also got tired really quickly. The Atlanta airport is LARGE. Our gate was all the way at the end of the terminal. We had to get wheelchair assistance for my dad since he’s still wobbly. Our wheelchair assist person walked SO FAST. I guess it was good exercise, but it wore me out just walking through the airport.

Baltimore was very hot. My sister took us to places that were either outdoors with fresh air or large so that we wouldn’t be on top of other people. Her graduation was pretty quick, which is always nice. She ended up being the very last person called because she got out of her seat and they wouldn’t let her back in. She officially has her Bachelors of Science in Nursing, not officially a registered nurse yet. Yay!

We also had a quick stint in Washington, DC because my dad really wanted to go to the Air and Space Museum. We never do things that dad wants to do. So we did it. We also went to a Viet shopping plaza in Falls Church, VA afterwards for some lunch. It was a quick trip, but it was good.

My cousin, Nick, also visited me the weekend before we went to Baltimore. He said he just needed a getaway. He knew I couldn’t do much. We just hung out and went Pokemon hunting. All of my younger cousins are becoming so grown up! I feel so old. But, it was nice to have family in town. He also drove us everywhere, which was a plus because it’s so uncomfortable having a port with a seatbelt across your chest.

Other than that, I haven’t been up to much. I’m excited to be able to go out and do things again. I miss grocery shopping. It’s not the same making a list and having my mom go for me. I can’t wait to eat raw sushi, soft cheeses, and soft serve ice cream again! I can’t wait to go to Target! I miss Target. I think those are on the top of my list.

I have my 3rd cycle of brentuximab next week. My sister is also coming home for a couple of weeks. Then, I’ll be going to New York for a week to see my family, the new babies, and celebrate Lyra’s very first birthday! August should be a good month. Things are looking up! Yay!

I will leave you with some pictures of me and my sister in Baltimore.

Pokemon hunting on top of Federal Hill with a view of the Inner Harbor.

Pokemon hunting on top of Federal Hill with a view of the Inner Harbor.

Following dad around the Air and Space Museum.

Following dad around the Air and Space Museum.

~SL

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