I know I said before that things were crazy. But, it just keeps getting crazier! I just needed a day to relax before sitting down and writing about it. There is just so much going on. I think my last post ended with my medical evaluation day.
Since then, I’ve had to go back to the hospital for my EKG and echo. Good news! All of my test results came back great. My mother and I went back to the BMT office that following Tuesday for “patient education.” The nurse went over all of my test results and everything was great. Lungs, brain, heart – all good. That kind of pissed of my mom. “If everything is good, why is she sick!?” She gets on my nerves, but I know it’s out of love. I can’t imagine going through all of this with my own child.
We didn’t really learn much on patient education day. It really just felt like a waste of a day. That Friday, I started my Neupogen injections at home. This is the medicine that helps my bone marrow overproduce stem cells so that there’s enough to collect for the transplant. I had to inject myself every morning and evening. The first time I had to shoot myself, I had to do a countdown. I guess I got used to it pretty quickly. The syringes had to be refrigerated so it was kind of a pain to take them along during my birthday trip to Nashville. But, of course, I had to. Gotta do what you gotta do.
My birthday weekend also happened to be my last weekend of freedom so my awesome boyfriend, Justin, took me to Nashville for one last trip. It was close enough to travel with the Neupogen in a cooler and I wouldn’t get too sore from being in the car for so long. We both had also never been there before. We got there late Friday night so we just walked along Broadway (Honky Tonk Highway) and found a restaurant (The Stillery) to eat dinner. The mac and cheese was really good. Broadway reminded me of Bourbon Street in New Orleans. There were so many people everywhere. So many lights. Live music on every corner. It was so lively! I just wish I wasn’t so sore from the Neupogen (it causes bone pain since your marrow is being overworked) and that I could drink.
Saturday was my birthday so we did everything I wanted to do! We had lunch at the Peg Leg Porker, a really delicious barbecue place. We went to the Musicians Hall of Fame. They were having half price admission because they just opened a new Grammy exhibit. We walked around until I got tired, which didn’t take long (especially with stairs! OMG!). That night, we had an early dinner at 5th & Taylor. It was so good and when I got back from the restroom, Justin had ordered a dessert with a candle for me to blow out.
After dinner, we headed to the Grand Ole Opry. Neither of us are country music fans, but it’s what you do when you’re in Nashville. The show is live on the radio so all of the hosts and musicians are very entertaining. Even for not being a country fan, it was a really fun night. It was a full house and we bought last minute tickets. We were all the way on the end, but still a really good view. We even saw fireworks on the way back to the hotel. I love fireworks!
The next day we had lunch with one of my high school friends, Jessica, before we headed out. She swiped right on Justin on my Tinder account (gasp! We are a Tinder love story!) so we owe her. We headed home listening to Ask Me Another the whole way back. We went out for sushi that night with my parents since I won’t be able to eat raw fish post-transplant. It was the perfect last weekend of freedom.
On Monday, I had to have my triple lumen catheter placed. They said they would give me something to make me “comfortable” but I wouldn’t be completely put under. But, I just couldn’t get comfortable enough. I didn’t feel anything, but I was wide awake. I couldn’t see anything because they had me covered up with the sterile drape, but I felt when she tugged the catheter underneath my skin. Justin and my mom were with me at the hospital all day. Well, it actually didn’t take that long. We were back home by the afternoon. I’m still sore from the catheter, but I have lots of pain medication. And I’m still trying to figure out the best way to shower with it since I can’t get it wet. It takes a lot of press n’ seal wrap.
Tuesday was my first day of collection. I didn’t know what to expect. I got hooked up to the apheresis machine. One line took my blood out. It cycled through the machine to remove the stem cells and then the blood got cycled back into me through a second line. The third line was for calcium. I guess the process depletes your calcium quite a bit so they give you some IV calcium during the collection. About an hour in, my nurse, Angel, noticed my potassium was low too. So they added some IV potassium to the calcium line. We were there for about 4 hours. Angel basically stood by my side the whole time to monitor everything. My mom just watched TV. I couldn’t pee! If I had to pee, I would have had to use a bedside commode. So I just didn’t drink any liquids.
We had to hang out for two hours after the collection so that the stem cell bank could process everything and let us know if we had to do another collection day. Luckily, I stayed on top of my Neupogen because they said they collected above and beyond what they needed! Stem cells are a milky kind of color. So Angel likened my stem cells to a bag of tomato bisque. The process could have taken up to 4 days, so I got the rest of the week off!
Since the catheter placement, I’m no longer able to drive (not sure why) and I can’t go into public places because I’m at a higher risk of infection. So I have the week off, but I haven’t been able to do anything.
Next Tuesday, I’ll have some pre-chemo labs and evaluation. Then I start high dose chemo on Wednesday. I’ll have chemo every day up until my transplant on the 19th. It feels like things are moving pretty quickly.
I tried to see as many people as I could before my pre-transplant isolation. I had a last minute Rho Class brunch with my line sisters. Alana drove in all the way from Columbus, GA. Danielle got in the night before from Gainesville, Florida to surprise me! We hung out for a bit after eating. Danielle had to leave for Florida shortly after so it was really a quick trip for her. My line sisters are the best.
I had a last minute dinner with my sorority family line too. My grandlittle came all the way from Athens to have dinner with us. We had sushi. Again, trying to get all of my sushi in before I can’t have it anymore.
One of my line sisters, Diana, donated her platelets today! At Atlanta Blood Services, your donation goes straight to me. I think that is so cool! Justin is going to do it this weekend after he takes me to my doctor’s appointment. One of my sorority sisters is also getting her dad to go donate this weekend too. Just remember, a transplant patient needs 50 units of platelets on average. So if you have a few hours to spare, please go donate for me! Blood type is not an issue because they’re just taking platelets and not whole blood. The biggest issue people are running into is that they’ve recently gone of the country or they’ve gotten a tattoo within the past year. But, you can call ABS and they’ll pre-screen you and schedule an appointment. They have two locations – Atlanta/Northside and Cobb County. Do it! Be my hero! Save my life! Even if you can’t donate, please share the info with your friends, family, coworkers, anyone in Atlanta!
I’m a little high on pain meds right now. So I’m not sure if I rambled or if all of this made sense. But, that’s where we are now. Getting ready for chemo to start and then my 3 week stay in the hospital. Getting closer to the end!
I just want to thank everyone who has been there for me. All of the rides (since neither my mom or I can drive all the way to Atlanta), all of the check ins, the platelet donations, etc. It really has been so crazy but I don’t think I’d be able to get through it without everyone’s help and support.
Also, big thanks to everyone who donated to my Light the Night fundraiser. I wanted to raise $500 for my birthday. But, it’s all the way up to $1,345! Thank you so much to everyone who donated! Don’t forget to sign up to walk with me and my team if you’ll be in Atlanta!
I love you all! Thanks for reading this ridiculously long post.