One More Time!

It’s time to celebrate!

I had a wonderful pre-chemo weekend. When I left the LLS office on Wednesday, my supervisor advised me to spend the weekend having fun with all of my friends and family before I had to start treatment again. I would say it was a success! I love my friends!

The weekend started with our Friendsmas potluck. I made a really good apple crisp. I also brought a box of assorted alcohol for my white elephant gift. It was stolen once, so I consider that a desirable gift. Win! I also won one round in Cards Against Humanity. That’s also a win for me because no one ever picks my cards.

Everyone at our Friendsmas Celebration!

Everyone at our Friendsmas Celebration!

The next day, we went to do some holiday volunteering at MedShare, a non-profit organization that takes surplus medical supplies and ships them to third-world countries. It was tiring because we were on our feet the whole time. It was cool because we were sorting catheters. It sounds gross, but it’s interesting to me since I have one inside of my body at all times. That sounds weird too. We even found the surgical trays that the doctors actually use to place my Power Port. I wonder how they became surplus. I was very amused to see what they used in my surgery and what’s inside of me. Creepy! Oh and then we had Korean BBQ afterwards. I ate a lot considering how low my appetite has been, which is good.

This is what I have inside of me! I have this booklet.

This is what I have inside of me! I have this booklet.

Power Port surgical kit.

Power Port surgical kit.

This morning I had coffee with one of my old high school friends, Sarah. I love catching up with her because we always have so much to talk about, even after years of not seeing each other. She’s always checking in on me still. She and her parents parents have been so supportive of me throughout everything. They are all around amazing people.

Then, one of my favorite couples (JR and Christine) took me out for Italian food at one of our favorite restaurants, Provino’s. They have these crazy good garlic rolls. I brushed my teeth and rinsed with mouthwash, but I can still taste the garlic. So good. We ended the meal with this delicious panna cotta too. Nom. It was like my last supper before chemo wipes out my taste buds.

Not only did I get to hang out with a bunch of my friends, but I was super productive. Since I have no income, I made a lot of my Christmas gifts. So, I finished all of those. I also finished all of the actual Christmas shopping that I had to do. I finished all of my financial aid applications, which makes me feel like I’m in school again. I mailed some gifts. I fixed the Netflix app on my Smart TV that my dad bought me in preparation for my post-transplant isolation. My mom and I also did a test run on getting to my cancer center since she’s going to be dropping me off in the mornings. My cancer center is on her way to work, but she’s not that great of a driver so we had to do a test run so she doesn’t get lost.

My line sister and her husband (Amanda and Michael) gave me this adorable card wishing me well on my next round of treatment. One of my other sorority sisters mentioned me in one of her YouTube videos, which prompted a bunch of strangers to donate to my new GoFundMe page. The new page was set up by my best friends to try to ease some of the financial burdens for when my deductible starts over in the New Year. Stem cell transplants don’t come cheap! My best friend, Kelsey, volunteered to take me home from treatments over her lunch breaks. Her mom also called to remind me that she’s also available to help out, too. So nice! And my little bro, Josh, volunteered to take me to my Day 4 appointment for my Neulasta shot. So I’ve gotten lots and lots of support over the last couple weeks, which I really need because starting this new round of chemo is still super scary. Thank you to everyone who has been reaching out. It is much needed and appreciated.

One last thing before I go. The other day I came across someone on Facebook who had posted a status that deeply offended me. This wasn’t the first time she’s posted something like this either. It said something along the lines of illnesses, such as, cancer, diabetes, and obesity are caused by a poor lifestyle and eating habits so people should just eat better and take care of their bodies in order to avoid getting these diseases. Yes, that is true in some cases or specific types of diabetes and types of cancers. But, there’s not just one reason that something happens. There are genetic pre-dispositions and environmental effects. Some causes are still unknown, even to the best doctors and researchers. For you to just roll everything up into one simple solution just because you got your degree in dietetics or nutrition or some shit does not mean you’ve found the cure all for every disease.

Yes, people should take care of their bodies. But, don’t you dare tell me that I brought this upon myself. I have had my fair share of kale breakfast smoothies, salads, salmon and black bean quinoa burgers. Yes, I indulged in fast food sometimes. But, I wasn’t eating cheeseburgers, fried chicken, and milkshakes for every meal every day. I was playing tennis, going to the gym regularly for yoga and weight lifting. I was running. And let’s be for real. No one likes running. I think in the past year I’ve run at least two 5K’s, one 10K, one 15K, and a half marathon, plus all of my training. Even all of my doctors were shocked to find out that I had cancer because I was so healthy.

You can’t oversimplify the cause of a disease. If it was that simple, we wouldn’t be sick! Don’t you dare tell me that this is my fault and that I didn’t take care of myself! I think people should do a little more research or specify when making such assumptions that can offend people. You’re not a doctor. You’re not an oncologist. You have no idea what it is like to be a cancer patient. You have no right to oversimplify my disease and make it sound like it was self-inflicted. And that’s all I have to say about that.

Day 1 of my 3 consecutive days of ICE chemo starts tomorrow. It’s going to be a very long treatment (5-6 hours). Wish me luck!

~SL

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